In October 2015, supported by USAID/PEPFAR, Project SOAR established a small working group (SWG) with representatives from a variety of nongovernmental organizations, and several experts within and external to SOAR. The SWG outlined a process for evaluating and updating the Stigma Index, launched in 2008, that would be transparent and incorporate as many perspectives as possible in the process. The Stigma Index is both a data collection tool and an empowering intervention for the interviewers collecting data and the interviewees who are sharing their experiences of stigma. Since the Stigma Index was launched, there have been shifts in the HIV epidemic, growth in the evidence base on how different populations are affected by stigma, and changes in the global response to HIV—particularly given the recommendation of early initiation of treatment. These developments highlight the need to update and strengthen the Stigma Index to be even more useful as a measurement and advocacy tool.
Project SOAR. 2017. "Updating the people living with HIV stigma index," Activity brief. Washington, DC: Population Council.
Supporting Operational AIDS Research (Project SOAR)